Home

Welcome to this ‘home’. It’s a place to take a deep breath, find resources and hope, and have company on the journey with Alzheimer’s.

Please settle in this chair, put your feet up, wrap an afghan blanket around you like your grandmother made, have a virtual cup of tea…

and have hope.

Tryn Rose Seley
trynrose@gmail.com

Posted in This is the Beginning | 6 Comments

Arizona View

4/14/14

4/14/14

 

It’s a new day, a new chapter of living. I’ve looked at the sky before, but at midnight last night, it felt like I was seeing constellations I’d never seen, smelled flower scents and heard birds for the first time. I love an eclipse, and I share it with you here. May you find strength and inspiration in your next chapter of living.

Tryn Rose Seley, Author, App Designer, Art Class Facilitator Facebook.com/caregiverheart

Posted in This is the Beginning | Leave a comment

BiddingOwl – Loving Arms Mission Auction-Dr Oz, Lisa Oz & Tryn Rose Seley, Among Many

BiddingOwl – Loving Arms Mission Auction.

By clicking on the link above before March 31st, 2014, you create a win-win for yourself and those you love! Loving Arms Mission was created in Nepal as two orphanages, and turned into two large, wonderful families. Their annual auction features many wonderful gifts and services, including 2 tickets to The Dr. Oz Show, Lisa Oz’s book about relationships called “Us,” and my caregiver book, “15 Minutes of Fame: One Photo Does Wonders.” Take action today!

Posted in This is the Beginning | Tagged | Leave a comment

Valentine’s Day For Both of You

“What if My Valentine Has Dementia?”

Thank you Tami Neumann of Conversations in Care for this opportunity to speak with your listeners. And please, create Valentine’s Day any day you need it with these ideas.

Listen in by clicking here:  http://ow.ly/trPvx 

IMG_2266
Posted in This is the Beginning | Leave a comment

Start Small

Start small, start collecting:

photos

song lyrics

poetry collections

spiritual resources

homemade or published works

powerpoint slide shows

YouTube links

Having these resources available at all times will make it easier to do any part of your day together.

“I keep a photo or story nearby and a song on my lips at all times of the day to add focus or to distract a person from perceived difficulties. The flow keeps moving forward at any time of the day during the morning routine of shower, dressing, preparing for breakfast, after breakfast, in the bathroom, while sitting out on the patio, while preparing a meal… It keeps us both entertained, connected, and builds trust during all kinds of tender and personal circumstances.”IMG_8366

~p, 26, “15 Minutes of Fame: One Photo Does Wonders To Bring You Both Back to Solid Ground”

Posted in This is the Beginning | Leave a comment

Care for the Caregiver

IMG_0168I read so much on the world-wide web about self-care while caregiving.

You deserve care, for sure.

I don’t believe in saying, “Take a break, take a bath, have a walk with a friend, make sure you care for yourself…” because the answer is “When? How? I am caregiving full-time, all the time, 365/24/7…”

So instead, from my own caregiving days, I have learned to care for myself *while* caregiving. How? By creating 15 minutes of fame a day for me, the one I care for, and any who join the circle of care. When I am telling great stories of life, every day, then *that* is what we’re doing.

“When you create 15 minutes of fame every day for a person, those 15 minutes improve the daily mood, energy, and hope…When your mood and energy are good, you have a good outlook on life, and you can use that energy to create positive circumstances. When his or her mood and energy are good, he or she has a good outlook on life and you can use that energy to create positive circumstances…You’ve created solid ground for both of you.” ~p. 6, “15 Minutes of Fame: One Photo Does Wonders To Bring You Both Back to Solid Ground”

Photos, songs, stories, books with favorite pages marked, sitting right there on the table, begging to be opened and read aloud for the benefit of all within earshot (and even on Skype for those far away) – generate the fun, the pride, the joy of a full and interesting life, to draw upon, consider, and celebrate, every single day. If a new caregiver joins the team, he or she knows what to say immediately to bring this fun, pride, and joy to this day, in this moment. So do grandchildren, neighbors, family friends who otherwise might not know what to say. Show them what to say, then they can say it, with love, authenticity, and success, for all of us.

May it work for you. Let me know how it goes.

Posted in This is the Beginning | Tagged , , , , | Leave a comment

Book Review: Cindy Brown, Girls with Swagger

15 Minutes of Fame – for Caregivers

dateAugust 9th, 2013

Cover Tryn bookWomen often find themselves in the position of caregiver – for children, parents, or others with special needs. The demands of caregiving can leave us feeling depleted and sad. A new book from Tryn Rose Seley, 15 Minutes of Fame: One Photo Does Wonders to Bring You Both Back to Solid Ground provides some ideas on how to raise your effectiveness and lower your frustration if you are caring for a relative or others who have dementia.

In the book, Tryn says: “As a caregiver, I share one photo, one song, one story about that person’s life every day, all day, whatever we’re doing. I wrote this book because I want to empower you to do the same.” The book has stories about people she has worked with and what she’s learned, along with photos and illustrations to give you ideas on how to deal with the frustrations of working with someone who might not remember a conversation that you had five minutes ago, but remembers people, stories, and talents from the past. Read more…

Posted in This is the Beginning | Leave a comment

From Arizona to You-A Story about Caring

This morning, my husband found a hummingbird, lying on the ground, freezing. It might have had a fight with another territorial hummer, or it might have run into our window near the feeder. First, he picked it up with gloves, and placed it on a towel in the sun, so it might warm up and recover. We planned to rearrange our day, nurse it back to health, clear out a big box, re-purpose a dropper to feed it nectar. Then, it flew away into the sunshine! We were ready to lend more support for its recovery, but were glad it recovered from its traumatic experience with a little help from us.

The other action we took was we added a second feeder in another part of the yard, so there wouldn’t be so many fights. There’s room for everyone, friends…

Like caregiving, sometimes we make plans for that person’s best interests, and part of the plan is useful, but the rest is not needed, or things change moment to moment.

May your path be as smooth as it can be, and you are ready to smile when a challenging moment turns towards the sun.

See original post, and more, at Facebook.com/caregiverheart
Photo: This morning, my husband found a hummingbird, lying on the ground, freezing. It might have had a fight with another territorial hummer, or it might have run into our window near the feeder. First, he picked it up with gloves, and placed it on a towel in the sun, so it might warm up and recover. We planned to rearrange our day, nurse it back to health, clear out a big box, re-purpose a dropper to feed it nectar. Then, it flew away into the sunshine! We were ready to lend more support for its recovery, but were glad it recovered from its traumatic experience with a little help from us.</p>
<p>The other action we took was we added a second feeder in another part of the yard, so there wouldn't be so many fights. There's room for everyone, friends...</p>
<p>Like caregiving, sometimes we make plans for that person's best interests, and part of the plan is useful, but the rest is not needed, or things change moment to moment. </p>
<p>May your path be as smooth as it can be, and you are ready to smile when a challenging moment turns towards the sun.

2

Posted in This is the Beginning | Leave a comment

Book Review for “15 Minutes of Fame”-Brenda Avadian, The Caregiver’s Voice

Thank you Brenda Avadian for the wonderful review! Visit her website for wonderful resources.

The Caregiver’s Voice Review: 15 Minutes of Fame

15 Minutes of Fame Tryn Rose Seley Tryn Rose Seley’s 15 Minutes of Fame is wisdom delivered elegantly. Her idea is so simple even a caregiver can do it!

The best ideas are often so simple we knock ourselves on the head and ask, “Why didn’t I think of that?”

Well, professional caregiver, photographer, and musician, Tryn Rose Seley did think of it in her attractive book, 15 Minutes of Fame (Empowering Caregivers [for] those with Alzheimer’s).

Seley has spent her life with people who need care, from her early childhood with her brother to caregiving in private homes and care communities. Seley has developed simple techniques that transform the cognitively impaired person’s anger and discomfort into peace and acceptance.

How does she do it?

In her introductory remarks, Seley writes:

As a caregiver, I share one photo, one song, [or] one story about that person’s life
every day, all day, whatever we’re doing.

That’s all?  Just one photo?  One song? One story?

When you read her book, you realize how in 15 minutes she brings people back to terra firma or “solid ground.”

She explains why this technique works and why it’s important for  both the caregiver and care recipient.

Want a hint?

In the fast-flowing river of life–sometimes. all it takes is one person who will take a few moments to connect with another, meaningfully.

This beautifully crafted book makes a delightful gift for the holidays or anytime of the year.

Caregiver Heart – Tryn Rose Seley’s website

15 Minutes of Fame is available on Kindle at Amazon.com

 

About the Author

Brenda Avadian, MA, Executive Director, founded The Caregiver’s Voice in 1998 while caring for her father who lived with Alzheimer’s disease. As a prolific author and national spokesperson for family caregivers and professionals, she brings hope and strength to caregivers with knowledge, support, and humor.

Posted in This is the Beginning | Leave a comment

How to Celebrate Holidays, and Create Them Every Day

Happy Holidays

+ enlarge

 

Be gentle with yourself and your expectations around holidays, which are challenging for anyone, particularly those with Alzheimer’s. Plan with care, enjoy your family and friends, and adjust the schedule to suit a person’s energy.

Here are some suggestions of ways to celebrate holidays:

1) Have a party early in the day, when energy is best.

People with Alzheimer’s, like many of us, need to conserve energy. Never mind the midnight traditions; if you gather at 10 a.m. or 2 p.m., you and your family member or friend will enjoy the event, skip the over-extended feelings, and get home at a reasonable hour.
2) Create a quiet room for 1:1 visits, and film the rest of the festivities to re-play for days, months, and years to come.

A person with dementia can manage short, simple visits. Create this atmosphere for success. The happy, boisterous fun can happen in another part of the house. The best part: if you run a camera in both rooms, you have captured the joy of the party, and can selectively play back the event in smaller bursts to enjoy the fun at any time of the year. You can improve the mood on a Tuesday in March, or a Saturday afternoon in July. When you and the one you care for needs a lift, play this footage.
3) Leave a journal for family and friends to write memories of this gathering, or ones from the past, to read aloud any time you need a good story.

Holiday visitors may come once a year, but you can extend their presence by asking them to write thoughts, affirmations, and stories from childhood, college, or any part of life. It’s a gift that keeps on giving; it’s why we invented writing, so we can ‘go back’ and read it again for information or pleasure. Writing these stories down brings the past to the present, where it can be re-lived, now and in the future.
4) Set the clock to Midnight at 6 p.m. on New Year’s Day, sing, celebrate, and go home early!

I worked for a beautiful retirement community in Colorado. For holidays and special occasions, we decorated the glorious room which had high ceilings, grand wooden floors, and stained glass windows. It was a setting likened to a five star hotel. And on New Year’s Eve, we lowered the large sparkling crystalline ball-at 7 p.m. We toasted the New Year, sang ‘Auld Lang Syne’, kissed each other, and went home while we had the stamina to carry us there!

When it comes to holidays this year, consider this: notice, adjust, and explore the possibilities of having full celebrations a different way. Don’t give them up; change them up.

Tryn Rose Seley, Author of “15 Minutes of Fame: One Photo Does Wonders”

facebook.com/caregiverheart
twitter.com/trynrose

Posted in This is the Beginning | Leave a comment

Caregiving Strategies to Engage with Seniors with Alzheimers 07/23 by Empowering Family Caregivers | Blog Talk Radio

Caregiving Strategies to Engage with Seniors with Alzheimers 07/23 by Empowering Family Caregivers | Blog Talk Radio.

Check in with me on eCareDiary’s radio show! This link will lead you to the interview live on Tuesday, July 23rd at 11am Arizona Time, 2pm EST, or any day after this one. Call 347-857-3399 to talk with me and Polly Whitehorn, host of the show. Follow this group for great caregiving resources.

Posted in This is the Beginning | Leave a comment