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Welcome to this home.

Comfy chair

Comfy chair for you

It’s a place to take a deep breath, find resources and hope, and have company on the journey with Alzheimer’s.

Please settle in this chair, put your feet up, wrap an afghan blanket around you like your grandmother made, have a virtual cup of tea, read awhile…and have hope.

I am nearby, getting another cup of tea, or available for chatting in between passages. When you go to your own home, take my book with you, and know that I always welcome another visit, any time.

Take care, and stay in touch,

Tryn Rose Seley
trynrose@gmail.com

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Music To Our Ears: Interview with Lori La Bey

“Tuesday, a—-fternoon…” This is the song that comes to mind as we have our conversation on Tuesday, April 12th at 2pm EST, 1pm Central, 11am Mountain/Arizona. Alzheimer’s Speaks Radio is internationally known for its online presence as a fantastic resource for those with Alzheimer’s or other dementias and their caregivers. This photo is from Mindful Art class, the expressive arts class we do here in AZ.

Click on the purple link to join the conversation, or listen in after this date.

Tryn Rose Seley, Author, “15 Minutes of Fame: One Photo Does Wonders” at www.caregiverheart.com

All That Jazz

All That Jazz

https://alzheimersspeaks.wordpress.com/2016/04/11/music-to-our-ears-dementia-care/

 

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New Book by Deborah Shouse: A Chapter from Tryn Rose Seley

http://wp.me/pZp4Q-Eq

Click on the link above to get a sneak peek at my chapter in Deborah Shouse’s new book. Thank you Deborah for the honor of sharing Alzheimer’s caregiving IMG_8536.JPGstrategies with your readers.

Tryn Rose Seley

Author, 15 Minutes of Fame: One Photo Does Wonders

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Interview with Michele Desocio Spring 2016

 

https://blab.im/bcae5292c68e48faadfe57cae2cc9237

Thank you Michele Tabat Desocio for a great conversation. We share stories of #hope and #music about #Alzheimers and #caregiving.

Highlights at minutes 14 and 28.

Follow Michele at http://micheledesocio.com

Tryn Rose Seley, Author, “15 Minutes of Fame: One Photo Does Wonders” at http://caregiverheart.com

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Finding the Right Assisted Living Situation For A Family Member

I’m honored to share some advice from my experience with you, and with Seniorly’s readers. Click on the purple link below and read on.

Tryn Rose Seley, Author, “15 Minutes of Fame: One Photo Does Wonders To Bring You Both Back to Solid Ground” www.caregiverheart.com

https://www.seniorly.com/blog/2016/alzheimer-s-and-memory-care-i-remember-you

Seniorly.com is a free service for families seeking senior housing communities for their loved ones in the San Francisco Bay Area, Sacramento, Los Angeles, and beyond. Seniorly’s mission is to connect families and local housing providers by delivering services that keep seniors engaged and happy. Their Resource Center is stocked with articles on topics related to aging, and the Seniorly Living Blog features guest writing from industry experts.

We all need community. Seniorly can help you find yours!

 

 

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Free Book Preview from Amazon Kindle Version

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Click on the link below to read a bit of this book. May it inspire you to take it home and make your caregiving path easier today.

 

 

 

 

 

https://read.amazon.com/kp/embedasin=B00AZGEL40

&preview=newtab&linkCode=kpe&ref_=cm_sw_r_kb_dp_EdaJwb1E675E4

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A Creative Life Puts Alzheimer’s Behind Us

As the new year unfolds, I am committed to promoting music, storytelling, and art-creating as “the cure” for Alzheimer’s and other dementias. It’s the path I have chosen to walk. This path bears fruit for the ones I care for, the care-partner spouses, brothers or sisters, nieces or nephews, best friends, and the others who care: neighbors, Hospice angels, grandchildren, professional home-caregivers or care community companions. Scientific research and physical treatments have their place, and not in conflict with listening to music that lifts the spirit, remembering the best stories of life with a smile and a heart-swelling effect, and writing one’s own name on the back of an art card lovingly created. May the new year be filled with experiences that raise the energy of each person touched by Alzheimer’s, and may we see this disease fade as we walk the paths we feel led to pursue in the name of wellness for all.

Create art, leave Alzheimer's at the door

Create art, leave Alzheimer’s at the door

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Music Music Music

IMG_8050Music is something we all can ‘resonate with.’ When I’ve done Musical Instrument Museum tours, I always ask for a show of hands: “Who plays a musical instrument?” and “Who likes to listen to music?” All hands go up. This applies to all of us. It’s the latest buzz in the culture that music improves the lives of those with Alzheimer’s or other forms of dementia, and it’s true. I’ve seen it time and time again.

The photo here shows a music book my longtime friend had left on the organ at a church in Tucson. I found out years later she had developed serious dementia. Her daughter-in-law, who had brought her home to the east coast, found an electronic keyboard. When my friend sat down and saw another songbook of hers, she played it cover to cover. If the keyboard hadn’t been provided, she may have never played again. But she had the chance to show her true colors, and they were beautiful to hear.

I knew another woman at a care community who couldn’t speak comfortably anymore, but when I started playing live music one evening a week right after supper, she sat in the front row and sang every – single – word – of – every – song. Wow, I said to myself, this is powerful. We made sure she was at each music evening, so she could access herself again so beautifully, and so others could see her come to life again, and regain respect for her as a connected human being.

We humans still need proof that someone is ‘in there’ and when we can see a transformation like this, it’s good for all of us.

So make music, or provide it for yourself and the one you care for. Keep song lists on the table or piano, and see if the one you love remembers. I’ve seen them remember often; make it easy, and start the music yourself. It will put a spring in your step too. Win-win.

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Time for Three – Amazing Quartet

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Returning to Solid Ground – Personalizing Care – An Interview with Tryn Rose Seley

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In 2012, Tryn Rose Seley published a beautiful book titled “15 Minutes of Fame.” This little gem takes a look at personalizing dementia care and improving life’s experience for those who have trouble remembering. Creating moments of joy each day should be the focus of Alzheimer’s care, Seley says, and her book introduces readers to practical ideas for doing this.

Seley’s philosophy is designed for those who need help each day getting back in touch with people and places in their lives. Her idea of “bringing people back to ground,” or centering them with a touch, a song, a favorite photo, or a familiar story is comforting. For Seley, it doesn’t matter whether these songs or stories will be remembered; it’s all about feelings or memories in the moment. Music is an important part of awakening memories and reminding those with memory loss of familiar things and places.

Early in her career, Seley used music to open doors of communication while teaching preschool-age and children with special needs. Later, as a professional caregiver, she discovered that music and art could spark memories for older people unable to communicate. Seley’s work with the Alzheimer’s Association program, “Memories in the Making,” enriched her experience with stimulating long-forgotten memories. “We can raise energy with music and storytelling,” Seley says. “People (with memory loss) go back to one or two things that have meaning for them. We aren’t teaching art, but drawing it out of them.” Her tools of trade are her voice, a guitar, and a mountain dulcimer.

Seley’s “15 Minutes of Fame” weaves together memorable quotes, photos, and an inspirational message to those who may be frustrated or having difficulty caring for someone with memory loss. “Returning to solid ground,” the underlying theme of Seley’s writing, explores the idea of using these resources to familiarize caregivers with their charges and provide them with tools for defusing difficult moments. Reintroducing the familiar evokes thoughts and memories of things that are comfortable—a personal approach that builds an atmosphere of mutual trust and positive interaction. This approach lightens moments for weary caregivers too, and reminds them of the importance of tending to emotional needs.

Seley suggests setting aside 15 minutes a day to learn something about someone or to talk with him or her about things that have special meaning. Sharing one photo, one song, or one story about a person’s life every day is the backbone of her philosophy for nurturing the spirit. Seley acknowledges that setting aside 15 minutes may seem difficult first, but she encourages people to start small and build up.

It seems that care facilities would benefit from integrating Seley’s approach into their daily routines. When prospective residents move to care communities, for example, staff usually requests written information about their personal preferences, hobbies, and talents. Why not ask families for favorite photos, songs, and descriptions of memorable events as well? This information could be assembled into notebooks, placed in residents’ private living spaces, and used as conversation starters for caregivers and visitors. Care communities could also divide responsibility among caregivers for learning about more about residents and sharing this information with staff and families.

This beautifully written book is recommended for any caregiver or family of someone with memory loss. “15 Minutes of Fame” is available on Seley’s website at www.caregiverheart.com as a digital download, as a Nook copy at barnesandnoble.com, or as a Kindle download on amazon.com. Contact her directly at trynrose@gmail.com for a hardcopy version of the book.

AUTHOR TRYN ROSE SELEY is a professional caregiver, musician, and photographer. She grew up in East Lansing, Michigan, and lived in Pennsylvania and Colorado before moving to her current home in Scottsdale, AZ. Seley has a degree in elementary education and has studied music, which she has woven into her personal and professional life.

Written By: Patricia Woodell
www.dementiastrategies.com
November 1, 2014

– See more at: http://www.dementiastrategies.com/returning-to-solid-ground-personalizing-alzheimers-care-an-interview-with-tryn-rose-seley/#sthash.knDDDruE.YTvSj1CD.dpuf

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Christmas from Bed

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So Christmas for me in 2014 was spent mostly in bed; I had a bout of salmonella, not fun at all. I didn’t get to put up most decorations (this is a photo of a Christmas past). I didn’t get to sing or lead music with small and large groups, which I’ve done for many years. Was I sad? A little. But I’ve also been around for 46 Christmases so far, and I drew upon Christmases past to cheer me up. I looked at pictures, read stories, and sang a few songs from my bedroom. It worked to bring the spirit of Christmas to our home and hearts. We also instituted a ‘ring the key chime, open a present’ tradition so we could gather some moments of joy whenever we needed one.

The one trip I’ve made out of the house was to the hairdresser. A good haircut goes a long way. She shared about a friend’s 4-year-old son who asked, “Mom, how many Christmases have I been around for?” Mom: “Well, you’re four now, so….four.” “I only remember 2, so I don’t believe you.” She showed him pictures and tried to prove that he’d indeed seen 4 holiday seasons thus far. It remains to be seen if he will believe her, but nevertheless, he’s been celebrated thoroughly. When someone with dementia doesn’t believe you’ve done what you’ve done, try to realize that you have done good things, and that celebrating from bed can be ok.

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